We provide advice and support to help you know and understand your rights, find useful information on self-directed support and personalisation and be part of a National network of people helping each other.
Our Community of Change supports Local Authority Children's and Adult Services, Provider Services from both independent and voluntary sectors, Clinical Commissioning Groups, user led organisations, and Housing Providers.
Resources that you may find helpful, such as fact sheets, toolkits, presentations and template documents and reports from our research and evaluation
As the Covid-19 pandemic emerged the partners in the Be-Human movement knew that it would cause big problems for both people and the professionals supporting them. Over many years disabled and older people and those who have long term health conditions have set out to build our personal and collective power. This is an essential part of our political struggle for rights and resources. Supporting this can be a challenging process for professionals in the care and support field at the best of times. They often work within inflexible systems which struggle to see the individual person, their life and circumstances and respond appropriately.
As Covid emerged, following a roundtable with NHSE personalised Care Group and with support from Esmee Fairburn Foundation the partners decided to take action. They needed both to make sure that people’s experiences were recorded but also to offer help. This was because though it was vital to register experience to ensure post pandemic action, this would not be enough – they had do something to help, there and then.
Record your experience of care and support during the Coronavirus pandemic
Register of COVID-19 experienceThe ‘Be Human’ movement want to make sure that the response to the Coronavirus crisis does not undermine the human rights of disabled people and people with long-term health conditions or our principles.
To these ends, we have set up a register to record the experiences of disabled people and people with long-term health conditions, their carers and family members, of getting health, social care services and treatment for Covid-19 during the period of the Pandemic and its aftermath. We want to learn from people’s experiences, both good and bad, and to help where we can if it is appropriate.
Advanced Care Planning – DNACPR – Statement from NHS England
NHS England and NHS Improvement, along with its many partners, are committed to ensuring the continued delivery of personalised care. However, they acknowledge there have been recent examples reported of where people’s wishes and preferences have not always been considered.
In response, on 1 April 2020 the British Medical Association (BMA), Care Provider Alliance (CPA), Care Quality Commission (CQC) and Royal College of General Practitioners (RCGP) issued a statement emphasising the importance of a personalised care plan. This was reiterated on 7 April 2020, in a letter to the local system leaders from NHS England and NHS Improvement in which it was stressed that advanced care planning is undertaken on an individual basis.