June 26, 2024

About me… I am Co-Chair of the All-Party Parliamentary Group (APPG for Adult Social Care and am a shared lives ambassador and various voluntary roles. I have drawn on adult social care since I was 18. I have lived in Shared Lives for five years. I’ve also accessed respite/short breaks and PA hours. I have Autism and ADHD and several mental health diagnoses. I’m passionate and comfortable speaking about: Drawing on social care Drawing on health…

June 26, 2024

About me… I have spent my working life as a passionate advocate for small-scale relational community-led solutions that helped other local people. As CEO of the representative body for family-based support Shared Lives Plus, lobbied successfully for a regulatory approach which placed the burden of regulation on an agency rather than the families. After founding Community Catalysts in September 2009, as CEO I continued the struggle for a policy, legislative, regulatory and bureaucratic environment that…

June 26, 2024

My name is Andy McCabe. I have a disability called Spinal Muscular Atrophy which has resulted in significant muscle weakness and means I use an electric wheelchair full time. I can’t weight bear at all and have very limited arm and hand movement, meaning I have 24 hours support. I started receiving Direct Payments in 2009 when I was 19 and then moved to 24/7 Direct Payment paid support in 2014. I had significant problems…

January 9, 2023

Julie Stansfield, from Greater Manchester is to be recognised at the Palace of Westminster with the prestigious British Citizen Award (BCA) in recognition of her extraordinary endeavours. The British Citizen Award in partnership with One Stop, is now in its ninth year and recognises exceptional individuals who positively impact their communities throughout the country. Dubbed ‘The People’s Honours’ due to the fact that anyone with an OBE, CBE of KBE is ineligible to receive a…

December 21, 2021

The Local Government Association (LGA) and Think Local Act Personal (TLAP) have facilitated a survey which has been designed by people who use *Personal Assistants (PAs) for people who use PAs. The purpose of the survey is to find out about the challenges faced by people who use PAs since March 2020, particularly in recruiting (finding) and retaining (keeping) PAs. The survey is aimed at all people who employ PAs, or who are supported by…

February 8, 2021

Building Personal Power Baroness Jane Campbell and Julie Stansfield As the Covid-19 pandemic emerged the partners in the Be-Human movement knew that it would cause big problems for both people and the professionals supporting them. Over many years disabled and older people and those who have long term health conditions have set out to build our personal and collective power. This is an essential part of our political struggle for rights and resources. Supporting this…